New guidance to help healthcare staff support patients' families
A charity for families of disabled children has teamed up with leading paediatricians to help health professionals meet their patients' needs.
UK charity Contact a Family and the Royal College of Paediatrics and Child Health (RCPCH) have produced an information toolkit for health professionals to use when seeing families of children with a disability, long term or rare medical condition.
The guide – Promoting Self Care – contains information about organisations and resources, designed to help families manage their child's long-term health and social care needs once they leave the surgery.
Jill Harrison, Contact a Family's External Affairs Director, said: "Research shows that good information empowers parents of children with a disability or rare condition and helps them cope with the challenges they face. Without information, the entire family's health and wellbeing suffers."
The charity says that, from next year, already pressured health professionals are expected to have knowledge about all kinds of support networks for disabilities and long-term health conditions at their fingertips, in the Information Prescriptions initiative.
This guide is therefore designed to ensure they have the relevant information at hand when seeing families of children with a disabling or rare condition. Promoting Self Care contains information about the best organisations or resources to help families support their child, from time of diagnosis, through to transition to adult services.
Chris Verity, Vice President of Education at RCPCH, said: "Health professionals are increasingly under pressure to meet targets and provide a better service. This toolkit will enable them to meet their patients' needs and provide the best information to families whose children have a long-term health condition or disability."