More than a quarter of people with Parkinson’s have never had access to a specialist Parkinson’s disease nurse, a survey shows.
More than 13,000 members of the Parkinson’s Disease Society completed the survey which reveals significant inconsistencies in specialist care.
It found that another four out of ten people with the condition had not spoken to a specialist nurse in the last year.
Steve Ford, chief executive of the Parkinson’s Disease Society said: “Specialist care is vital for people with Parkinson’s and our survey reveals that while there have been a number of improvements across the UK, many people are still being let down by their local services from the time of diagnosis onwards.
“There is a urgent need to improve services so that every person with Parkinson’s gets access to the expert help they need at diagnosis and whenever they need it throughout the course of their condition.”
Access to physiotherapy, occupational therapy and speech and language therapy is improving, however most people with Parkinson s are not accessed and still do not receive help to manage their condition.
Steve Ford added: “Parkinson’s Disease Nurse Specialists are fantastic for patients and there is simply no excuse for any of the 120,000 people with Parkinson’s in the UK to be missing out on their support.”