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Tool for young kidney condition patients launched

Young patients with kidney conditions could benefit from a tool which holds information on over 45 different conditions. 

The website, funded by the British Kidney Patient Association (BKPA), and created jointly by the Royal College of Paediatrics and Child Health and the British Association for Paediatric Nephrology, offers information on causes, treatment and management of conditions. 

The resource is aimed specifically at parents and carers of babies, children and adolescents with kidney conditions, will be easy and free to access.

The BKPA hopes it will be a valuable reference tool where parents can learn more about their child's condition, before or following official diagnosis.

infoKid provides:

 - Information on kidney conditions that affect children, including how a condition is diagnosed, the symptoms, possible complications, treatment options and how it could affect a child in the future.

 - Detailed information about tests needed to diagnose or find out more about a kidney condition.

 - Detailed information about treatments used to support children with kidney conditions.

Dr Jan Dudley, consultant paediatric nephrologist at Bristol Children's Hospital and member of the Royal College of Paediatrics and Child Health led the project.

She said:“For families, the period following a child's diagnosis can often be overwhelming as there is a lot of information to digest and currently, it is difficult to find clear and accessible information about these kinds of complex conditions. infoKid contains high quality and reliable information, giving 'peace of mind' to thousands of children and their families living with kidney conditions."

“A huge amount of time and energy has gone into researching and creating this exciting new online patient resource. The BKPA is delighted to support such a comprehensive library of information for parents and carers,” said Paddy Tabor, CEO of the British Kidney Patient Association.

Find out more about infoKID by visiting the website