A pioneering global survey has questioned Alzheimer’s Disease patients as well as their caregivers about the burden of the disease.
The poll of 100 patients and 114 caregivers carried out by Alzheimer’s Disease International found that most patients still enjoy a good quality of life and a warm relationship with their caregiver.
The survey revealed that over 80% of patients felt they had continued to “keep a social life with their family and friends” and still felt “well-respected by family members.”
More than 70% of patients using Alzheimer’s Disease medications were “satisfied” with their treatment and felt the medication helped to control their symptoms.
Chairman of Alzheimer’s Disease International Orien Reid said the survey was an important step for Alzheimer’s patients, adding: “Twenty four million people around the world and millions more families have to live with the daily challenges and persistent stigma of dementia. It is time for them to have their voice heard on a global stage.”
Alexander Kurz, Professor of Psychiatry and Head of the Centre for Cognitive Disorders at Munich University, said: “I think it is long overdue that we hear from Alzheimer’s patients.
“This landmark survey gives us good insight into how the patient and caregiver see and respond to this disease from their perspective.”
The survey coincides with World Alzheimer’s Day 2007, a day of global solidarity between individuals and organisations fighting against the threat of dementia.